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Complete Health Indicator Report of Critical Congenital Heart Disease (CCHD) Screening


Percentage of Utah newborns screened for state mandated CCHD screening (by pulse oximetry) and the results.


Percentage Utah of newborns who either passed, failed, or were not screened for CCHD (by pulse oximetry).


The number of live born infants born in Utah during the year.

Why Is This Important?

Critical congenital heart disease (CCHD) represents a group of heart defects that cause serious, life-threatening symptoms and require intervention within the first days or first year of life. CCHD is often treatable if detected early. Some babies affected with CCHD can look and act healthy at first, but within hours or days after birth, they can have serious complications. Pulse oximetry newborn screening is a non-invasive test measuring how much oxygen is in the blood and can help to identify babies that may be affected with CCHD. Early identification allows for earlier contact with specialists who can help manage the infant's care in a timely and appropriate way, reducing potential complications. Utah CCHD Website[[br]] [] Testing of Newborn Infants Utah Health Code Statute 26-10-5.5(1)(d)[[br]] [] Rule R398-5-2. Birth Defects and Critical Congenital Heart Disease Reporting[[br]] Screening for Critical Congenital Heart Disease (CCHD) by pulse oximetry (POX) became mandatory for all newborns born in Utah on October 1, 2014, and should be completed when the newborn is between 24 to 48 hours old and is reported through Rule R398-5. Birth Defects and Critical Congenital Heart Disease Reporting.[[br]] []

Healthy People Objective MICH-32.1:

Increase the number of States and the District of Columbia that verify through linkage with vital records that all newborns are screened shortly after birth for conditions mandated by their State-sponsored screening program
U.S. Target: 45 States (44 States and the District of Columbia)

Other Objectives

Congenital heart disease (CHD) is one of the most common congenital abnormalities found in newborn babies. Critical congenital heart disease (CCHD) defines more severe forms of CHD that can lead to serious illness or even death soon after the baby is born. Important Facts about CCHD: *CCHD occurs when the heart does not develop normally before birth *CCHD is a leading cause of newborn and infant death *Some babies with CCHD are discovered by prenatal ultrasound, but other babies with CCHD are diagnosed after they are born *CCHD affects 2-3 of every 1,000 births[[br]] [[br]] To prevent serious morbidity and mortality resulting from missed or delayed diagnosis of CCHD, in 2011 the U.S. Secretary of Health and Human Services recommended that all newborns be screened for CCHD using pulse oximetry. As of October 1, 2014, Utah law requires every newborn infant born in the state to be screened for CCHD. The screening takes just minutes and senses the oxygen saturation by placing a soft probe on the infant's right hand and either foot. Low saturation values can signal a problem. Screening with pulse oximetry can identify a number of types of critical CHDs, the most common of which are: *Coarctation of the Aorta *Double Outlet Right Ventricle *Ebstein's Anomaly *Hypoplastic Left Heart Syndrome *Interrupted Aortic Arch *Pulmonary Atresia with Intact Ventricular Septum *Single Ventricle *Tetralogy of Fallot *Total Anomalous Pulmonary Venous Return *Transposition of the Great Arteries *Tricuspid Atresia *Truncus Arteriosus

How Are We Doing?

Utah is compliant with State Statute and CCHD screening.

How Do We Compare With the U.S.?

The following website has a listing of all states and current testing protocols:[[br]] [][[br]] []

Available Services

[[br]]Utah Department of Health and Human Services[[br]] Children with Special Health Care Needs[[br]] [] Utah Birth Defect Network[[br]] [] Children's Heart Foundation[[br]] [] Intermountain Healing Hearts - Utah-based family support group[[br]] [] March of Dimes[[br]] [] Mended Little Hearts[[br]] []

Related Indicators

Related Relevant Population Characteristics Indicators:

Graphical Data Views

Percentage of newborns Not Screened by pulse oximetry, by reason, Utah, 2014-2021

::chart - missing::

Screening Results
Record Count: 40
ECHO Performed20144.1%
ECHO Performed20157.8%
ECHO Performed20169.4%
ECHO Performed201710.5%
ECHO Performed201869.4%
ECHO Performed201974.6%
ECHO Performed202076.8%
ECHO Performed202175.5%
CCHD Screen Not Performed201495.2%
CCHD Screen Not Performed201591.0%
CCHD Screen Not Performed201688.9%
CCHD Screen Not Performed201788.1%
CCHD Screen Not Performed201818.5%
CCHD Screen Not Performed201913.7%
CCHD Screen Not Performed202011.8%
CCHD Screen Not Performed202114.3%
Deceased / Palliative Care20140.4%
Deceased / Palliative Care20150.6%
Deceased / Palliative Care20160.9%
Deceased / Palliative Care20170.9%
Deceased / Palliative Care20189.9%
Deceased / Palliative Care20199.7%
Deceased / Palliative Care20209.3%
Deceased / Palliative Care20217.9%

Data Notes

*Other: Includes newborns who were adopted (either out of state or foreign adoptions), newborns transferred out of state prior to screening or a MD was consulted and deferred the screen. Prior to 2018, the CCHD Screening Program did not review newborns reported as Not Screened. The significant decrease in newborns Not Screened beginning in 2018 represents the effort of the CCHD Screening Program verifying the reason a newborn was Not Screened. A newborn who has a diagnostic echocardiogram performed does not require a CCHD screen.

Percentage of newborns screened for CCHD by pulse oximetry by year, Utah, 2014-2021

::chart - missing::

Screening ResultsYearPercentage of newborns
Record Count: 24
Not Screened201455.2%
Not Screened20157.6%
Not Screened20166.4%
Not Screened20176.2%
Not Screened20183.2%
Not Screened20193.1%
Not Screened20203.1%
Not Screened20213.3%

Data Notes

Denominator for this graph is the number of live born infants born to Utah residents during the year.

Data Sources

  • Utah Birth Defect Network
  • Utah Birth Certificate Database, Office of Vital Records and Statistics, Utah Department of Health

References and Community Resources

[[br]]Baby's First Test: Critical Congenital Heart Disease[[br]] [][[br]]

More Resources and Links

Evidence-based community health improvement ideas and interventions may be found at the following sites:
  • Centers for Disease Control and Prevention (CDC) WONDER Database, a system for disseminating Public Health data and information.
  • United States Census Bureau data dashboard.
  • Utah healthy Places Index Map, evidence-based and peer-reviewed and supports efforts to prioritize equitable community investments, develop critical programs and policies across the state, and much more.
  • County Health Rankings
  • Kaiser Family Foundation's
  • Medical literature can be queried at PubMedlibrary.

Page Content Updated On 10/18/2022, Published on 12/20/2022
The information provided above is from the Department of Health's Center for Health Data IBIS-PH web site ( The information published on this website may be reproduced without permission. Please use the following citation: " Retrieved Fri, 29 September 2023 2:02:36 from Department of Health, Center for Health Data, Indicator-Based Information System for Public Health Web site: ".

Content updated: Tue, 20 Dec 2022 15:31:02 MST