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PHOM Indicator Profile Report of Birth Defects: Overall

Why Is This Important?

Major birth defects are associated with significant mortality, illness, and disability throughout the lifespan. Utah Birth Defect Network Website[[br]] [] Environmental Public Health Tracking Specific Utah Birth Defect Data[[br]] []

Birth Defects Prevalence by Birth Defect, Utah, 2013-2015

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confidence limits

Data Source

Utah Birth Defect Network

Data Notes

The denominator for Hypospadias and Congenital Posterior Urethral Valves is number of male live births. The denominator for Turner Syndrome is number of female live births. TAPVC = Total anomalous pulmonary venous connection.   [[br]][[br]] ^ ^**Prevalence rates for bladder extrophy, cloacal extrophy, common truncus, and single ventricle were suppressed under UDOH suppression guidelines.

How Are We Doing?

From 1994 through 2015, the Utah Birth Defect Network (UBDN) has identified over 20,000 pregnancies affected by at least one major birth defect collected by the UBDN. A review of UBDN data (1999-2015) showed that major birth defects in Utah were associated with 1.6 infant deaths per 1,000 live births. The prevalence rates of birth defects fluctuate over time. Common birth defects in Utah include heart defects (i.e. atrial septal defect, ventricular septal defect, pulmonary valve atresia/stenosis), hypospadis, Trisomy 21 (Down syndrome), and craniosynostosis. Additional information available at: Environmental Public Health Tracking Specific Utah Birth Defect Data[[br]] [] Birth Defect Infant Mortality[[br]] [] Infant Mortality[[br]] []

What Is Being Done?

The Utah Birth Defect Network (UBDN) is a statewide population-based surveillance system that monitors major structural birth defects of all pregnancy outcomes (live births, stillbirths, and terminations) among Utah resident women. The mission of the UBDN is to prevent birth defects and secondary disabilities by monitoring occurrence, referring to services, facilitating research, and providing education and outreach to children and families in Utah. The UBDN is a program under the Bureau of Children with Special Healthcare Needs, Division of Family Health and Preparedness, Utah Department of Health. Surveillance, research, birth defect prevention, and referral to services are keys to reducing infant mortality associated with birth defects. For surveillance, the UBDN currently contributes to tracking and assessing impact, trends, and disparities related to major structural birth defects overall, and their related mortality. For research, the UBDN collaborates with researchers locally, nationally, and internationally to help improve scientific knowledge on birth defects and to contribute to the development of evidence-based interventions that reduce risk of birth defects and its associated negative health outcomes. For birth defect prevention, the UBDN works with Utah communities to provide information and resources on how to reduce risk for birth defects through engaging in healthy lifestyles, avoiding environmental hazards, and talking with healthcare providers. For referral to services, the UBDN aims to help families with children with birth defects identify and access resources in their community. The UBDN has partnered with Utah's early intervention program (Baby Watch Early Intervention Program) which provides services and support for children with developmental delays and disabilities from 0 to 3 years old. UBDN is also active nationally within the National Birth Defects Prevention Network (NBDPN), a non-profit organization involving birth defect programs and individuals working at the local, state, and national level to raise awareness for birth defects. The NBDPN is committed to the progression of surveillance and research, to identify factors for prevention and assist families to minimize secondary disabilities. (For more information, see []).

Date Indicator Content Last Updated: 10/04/2018

Other Views

The information provided above is from the Department of Health's Center for Health Data IBIS-PH web site ( The information published on this website may be reproduced without permission. Please use the following citation: " Retrieved Tue, 22 October 2019 13:26:51 from Department of Health, Center for Health Data, Indicator-Based Information System for Public Health Web site: ".

Content updated: Thu, 20 Jun 2019 13:03:27 MDT