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Health Indicator Report of Critical Congenital Heart Defect (CCHD)

Critical congenital heart disease (CCHD) represents a group of heart defects that cause serious, life-threatening symptoms and require intervention within the first days or first year of life. CCHD is often treatable if detected early. Some babies affected with CCHD can look and act healthy at first, but within hours or days after birth they can have serious complications. Pulse oximetry newborn screening is a non-invasive test that measures how much oxygen is in the blood and can help to identify babies that may be affected with CCHD. Early identification allows for earlier contact with specialists who can help manage the infant's care in a timely and appropriate way, reducing potential complications. Utah CCHD Website[[br]] [http://health.utah.gov/cchd/] Newborn Screening Statute[[br]] [http://le.utah.gov/xcode/Title26/Chapter10/26-10-S6.html] Newborn Sreening Rule[[br]] [http://www.rules.utah.gov/publicat/code/r398/r398-001.htm]

Percentage of Newborns Screened for CCHD by Pulse Oximetry by Year, Utah, 2014-2015

Notes

Denominator for this graph is the number of live born infants born to Utah residents during the year.

Data Sources

  • Utah Birth Defect Network
  • Utah Birth Certificate Database, Office of Vital Records and Statistics, Utah Department of Health

Definition

Percentage of Utah newborns screened for state mandated CCHD screening (by pulse oximetry) and the results.

Numerator

Percentage of Utah of newborns who either passed, failed, or were not screened for CCHD.

Denominator

The number of live born infants born to Utah residents during the year.

Healthy People Objective MICH-32.1:

Increase the number of States and the District of Columbia that verify through linkage with vital records that all newborns are screened shortly after birth for conditions mandated by their State-sponsored screening program
U.S. Target: 45 States (44 States and the District of Columbia)

Other Objectives

Congenital Heart Disease (CHD) is one of the most common congenital abnormalities found in newborn babies. Critical Congenital Heart Disease defines more severe forms of CHD that can lead to serious illness or even death soon after the baby is born. Important Facts about CCHD: *CCHD occurs when the heart does not develop normally before birth *CCHD is a leading cause of newborn and infant death *Some babies with CCHD are discovered by prenatal ultrasound, but many babies with CCHD are diagnosed after they are born *CCHD affects 2-3 of every 1,000 births[[br]] [[br]] To prevent serious morbidity and mortality resulting from missed or delayed diagnosis of CCHD, in 2011 the U.S. Secretary of Health and Human Services recommended that all newborns be screened for CCHD using pulse oximetry. As of October 1, 2014, Utah law requires every newborn infant born in the state to be screened for CCHD. The screening takes just minutes and senses the oxygen saturation by placing a soft probe on the infant's right hand and either foot. Low saturation values can signal a problem. The seven primary targets for CCHD newborn screening are: *Hypoplastic Left Heart Syndrome *Pulmonary Atresia with Intact Ventricular Septum *Transposition of the Great Arteries *Tricuspid Atresia *Tetralogy of Fallot *Truncus Arteriosus *Total Anomalous Pulmonary Venous Return

How Are We Doing?

Utah is compliant with State Statute and CCHD screening.

How Do We Compare With the U.S.?

The following websites have a listing of all states and current testing protocols:[[br]] [https://www.newsteps.org/cchd][[br]] [http://www.babysfirsttest.org/]

Available Services

[[br]]Utah Department of Health[[br]] Children with Special Health Care Needs[[br]] [http://health.utah.gov/cshcn] Utah Birth Defect Network[[br]] [http://health.utah.gov/birthdefect] Children's Heart Foundation[[br]] [http://www.childrensheartfoundation.org/] Intermountain Healing Hearts - Utah based family support group[[br]] [http://www.intermountainhealinghearts.org/] March of Dimes - Utah Chapter[[br]] [http://www.marchofdimes.org/local/in-your-area.aspx] Mended Little Hearts[[br]] [http://www.mendedlittlehearts.org/]
Page Content Updated On 11/15/2016, Published on 12/07/2016
The information provided above is from the Department of Health's Center for Health Data IBIS-PH web site (http://ibis.health.state.gov). The information published on this website may be reproduced without permission. Please use the following citation: " Retrieved Sat, 24 June 2017 18:20:54 from Department of Health, Center for Health Data, Indicator-Based Information System for Public Health Web site: http://ibis.health.state.gov ".

Content updated: Fri, 26 May 2017 10:19:44 MDT