Complete Health Indicator Report of Birth Defects: Overall
DefinitionUtah birth defect prevalence per 10,000 live births.
NumeratorNumber of live births in Utah with a major birth defect.
DenominatorNumber of live births and stillbirths among women residing in Utah.
Data Interpretation IssuesMajor birth defects are broadly those that require medical, surgical, or rehabilitative services, and have an impact on the person's health and development. Major birth defects eligible for inclusion in the Utah Birth Defect Network (UBDN) encompass most (not all) serious structural birth defects, including common as well as uncommon anomalies of the heart (e.g., septal defects, conotruncal defects), face (e.g., cleft lip and palate), skull (e.g., craniosynostosis), limbs (e.g., missing digits), brain or spine (e.g., anencephaly and spina bifida), kidneys and genitourinary system (e.g., absent kidney, hydronephrosis, hypospadias), liver and gastrointestinal system (e.g., biliary atresia, esophageal atresia), as well as chromosomal anomalies such as Down syndrome. This report excludes certain mild conditions such as those heart findings detected in the preterm baby and that often resolve over time (e.g., patent ductus arteriosus); mild conditions not leading to treatment (e.g., coronal hypospadias not needing surgery); or conditions that usually do not lead to major medical concerns except perhaps in later stages of life (mitral prolapse).
Why Is This Important?Major birth defects are associated with significant mortality, illness, and disability throughout the lifespan. Utah Birth Defect Network Website[[br]] [http://www.health.utah.gov/birthdefect] Environmental Public Health Tracking Specific Utah Birth Defect Data[[br]] [http://epht.health.utah.gov/epht-view/topic/BirthDefects.html]
How Are We Doing?From 1999 through 2014, the Utah Birth Defect Network (UBDN) has identified nearly 17,000 live births with birth defects. Review of UBDN data shows that major birth defects in Utah are associated with 1.6 infant deaths per 1,000 live born infants. Birth defects also disproportionately contribute to prematurity. Additional information available at: Environmental Public Health Tracking Specific Utah Birth Defect Data[[br]] [http://epht.health.utah.gov/epht-view/topic/BirthDefects.html] Birth Defect Infant Mortality[[br]] [http://ibis.health.utah.gov/indicator/view/BrthDefInfMort.html] Infant Mortality[[br]] [http://ibis.health.utah.gov/indicator/view/InfMort.html]
How Do We Compare With the U.S.?Overall comparisons of birth defect rates with the U.S. must be interpreted with caution because each state may collect the data differently. Data from other states is available at the National Birth Defects Prevention Network (NBDPN) website ([http://www.nbdpn.org]). The overall rate of birth defects in Utah is generally in line with what is expected based on national and international levels. Overall, rates for specific birth defects are similar to that observed in programs with similar operating methods with two major differences: *One difference is the rate of Down syndrome that is somewhat higher in Utah than in other parts of the U.S., and that is consistent with the reproductive patterns in Utah whereby a comparatively higher proportion of pregnancies occur in the later childbearing years than in other states. *A second difference is the high rate of cleft lip and palate, which currently exceeds 1 in approximately 500 births, and is higher than in other parts of the U.S., for reasons that are not yet clear.[[br]]
What Is Being Done?Utah Birth Defect Network (UBDN) is been committed to providing quality information for tracking, assessing, and preventing birth defects. UBDN, in partnership with local and national organizations, is #Tracking all major birth defects to assess trends, address community concerns, examine clustering, and quantify morbidity and mortality; #Promoting and evaluating primary prevention of severe birth defects, including education campaigns among women and health care providers to promote the use of the B-vitamin folic acid to prevent spina bifida and other neural tube defects; #Searching for the causes of birth defects in collaboration with the U.S. Centers for Disease Control and Prevention (CDC).[[br]] [[br]] UBDN is also active nationally within the National Birth Defects Prevention Network (NBDPN), a non-profit organization involving birth defect programs and individuals working at the local, state, and national level to raise awareness for birth defects. The NBDPN is committed to the progression of surveillance and research, to identify factors for prevention and assist families to minimize secondary disabilities prevention. (For more information, see [http://www.nbdpn.org]).
Available ServicesBaby Watch Early Intervention Services[[br]] Phone (801) 273-2998[[br]] Toll Free (800) 961-4226[[br]] [http://www.utahbabywatch.org][[br]] Early Intervention services are available for children birth to three years of age with developmental delay or disability. Services include child health assessment, service coordination among providers, occupational and physical therapy, and speech and language therapy. Division of Medical Genetics[[br]] Department of Pediatrics[[br]] University of Utah Health Sciences Center[[br]] Phone (801) 581-8943 Integrated Services[[br]] (801) 273-2988[[br]] Integrated Services assists families of children and youth who have special health care needs with coordinated care planning, education and resources in order for them to make informed decisions.
Related Relevant Population Characteristics Indicators:
Graphical Data Views
Birth Defects Prevalence by Birth Defect, Utah, 2010-2014
Record Count: 13
|Spina Bifida (without Anencephaly)||3.9|
|Cleft Lip (alone)||5.6|
|Cleft Palate (alone)||6.7|
|Cleft Lip with Cleft Palate||7.4|
|Hypoplastic Left Heart Syndrome||3.0|
|Tetralogy of Fallot||3.5|
|Transposition of the Great Arteries (TGA)||5.0|
|Limb Deficiencies (reduction defects)||6.6|
|Trisomy 21 (Down Syndrome)||16.2|
Data NotesHypospadias prevalence per 10,000 male live births. Data for Hypospadias exclude isolated first degree hypospadias beginning in 2014.
Data SourceUtah Birth Defect Network
References and Community ResourcesUtah Birth Defect Network [[br]] Toll Free (866) 818-7096 [http://www.health.utah.gov/birthdefect] Utah Parent Center & Family to Family Network[[br]] Phone (801) 272-1051[[br]] Toll Free (800) 468-1160 voice or TDD[[br]] Espanol (801) 272-1067[[br]] [http://www.utahparentcenter.org][[br]] [http://www.utahfamilytofamilynetwork.org] Utah Family Voices - Family to Family Health Information Center[[br]] Phone (801) 272-1068[[br]] Toll Free (800) 468-1160 Medical Home Portal[[br]] Department of Pediatrics[[br]] University of Utah[[br]] [http://www.medicalhomeportal.org] Center for Disease Control and Prevention[[brr]] State-Based Tracking Systems [http://www.cdc.gov/ncbddd/birthdefects/states/]
More Resources and LinksEvidence-based community health improvement ideas and interventions may be found at the following sites:
- The Guide to Community Preventive Services
- Health Indicators Warehouse
- County Health Rankings
- Healthy People 2020 Website
Additional indicator data by state and county may be found on these Websites:
- Health Indicators Warehouse
- County Health Rankings
- Kaiser Family Foundation's StateHealthFacts.org
- CDC WONDER's DATA2010, the Healthy People 2010 Database.
Medical literature can be queried at the PubMed website.
For an on-line medical dictionary, click on this Dictionary link.
Page Content Updated On 10/23/2017, Published on 11/06/2017